Vitiligo

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Vitiligo

By Valentina P. (DangerousBadGirl) - www.mjloveland.altervista.org

The color of his skin used to be black, why is it white now? There's been so many rumours, speculations among the people, that I've decided to make a brief explanation here. Michael Jackson suffers from an disease called Vitiligo ("leukoderma"). Vitiligo causes destruction of melanocytes in the skin. Melanocytes provide the pigment that gives skin its color. The loss of melanocytes alters both the structure and function of these organs and results in the absence of pigment (irregular white spots or patches appears on the skin). It may turn up at any age. The cause of vitiligo is not greatly understood, and there may be many causes that result in the condition.

This disease affects an estimated 2% of the world's population. It affects individuals of all ethnic origins and both sexes. Loss of pigment most commonly is noted first on the hands, feet, arms, face or lips. Frequently this disease is progressive.

The course and severity of pigment loss differ with each person. Light-skinned people usually notice the contrast between areas of vitiligo and suntanned skin in the summer. Year round, vitiligo is more obvious on people with darker skin. Individuals with severe cases can lose pigment virtually everywhere. There is no way to predict how much pigment an individual will lose. Typical vitiligo shows areas of milky-white skin. However, the degree of pigment loss can vary within each vitiligo patch. There may be different shades of pigment in a patch or a border of darker skin may circle an area of light skin.
Vitiligo often begins with a rapid loss of pigment. This may continue until, for unknown reasons, the process stops. Cycles of pigment loss, followed by times where the pigment doesn't change, may continue indefinitely. It is rare for skin pigment in vitiligo patients to return on its own. Some people who believe they no longer have vitiligo actually have lost all their pigment and no longer have patches of contrasting skin color. While their skin is all one color, they still have vitiligo.

Vitiligo is a pigmentation disorder in which melanocytes (the cells that make pigment) in the skin, the tissues that line the inside of the mouth and nose and genital and rectal areas (mucous membranes), and the retina of the eyes are DESTROYED. As a result, white patches of skin appear on different parts of the body.
The thought of a black person turning WHITE from a so called bleaching cream is absurd. There is NO Scientific proof of this. And there are NO cases of such. If there were, it would be all over the news. And why would Michael be the ONLY black person who has used this so called product to become MILK WHITE, whiter than the whitest person? There are many cases of black people losing their melanon developing milk white patches, BUT NO cases of a black person turning MILK WHITE through a bleaching cream.
Some cases are more severe than others and can spread very rapidly over their bodys. This is why in the Oprah interview, Michael indicated that they "tried to CONTROL IT."
Some people are under this notion that there is some kind of "bleaching cream" that can change a black man, white. There were some facial creams, referred to as lighteners that have existed for ages. But those, so called skin lighteners, were only removing dark blemishes, or dead skin cells giving the impression that their skin was lighter. But after discontinued use, the melanocyte cells would bring back their normal skin pigment. And those individuals using so called skin lighteners are NOT MILK WHITE from using such a product. Neither is there evidence of a person using a skin lightening cream all over the body in the earlobes and crevices of the butt. That is absurd. Those skin lighteners are temporary changes in skin tone like suntans for white people.
Those who suffer from Vitiligo do NOT produce the cells that produce pigment. As such, as they gain more milk white patches that part of their body is PERMANENTLY MILK WHITE. For a "normal" black person (that produce pigment), they can NOT change their skin permanently because their genetic makeup produce the melanocytes cells that produce pigment and maintain color. If a normal black person get scarred tissue, it is the malanocytes cells that bring back color. It is their GENETIC makeup within their CELLS.
In fact, a recent article published in the September 7, 1999 Guardian (UK) indicated those using the “skin lighteners became “DARKER� while in the sun. Why didn't these individuals remain lighter? Because these individuals, unlike those suffering from Vitiligo, produce the melanocytes cells that produce pigment. Those who have Vitiligo do NOT. Thus, sun light for vitiligo sufferers does not make their skin darker. In fact, The sun makes them susceptible to skin cancer because they have no protection. If there was a cream that could turn a black man white, it would ROCK THE SCIENTIFIC COMMUNITY.

harm with vitiligo o
same harm with makeup on

Vitiligo patients use make-up, tanning lotions and various other products to camouflage the discoloration or blotches.
Michael has stated during the Oprah Winfrey interview that he uses make-up to cover the blotches and to even out his skin.
Some of the products used by vitiligo patients to camouflage discoloration are discussed at the Vitiligo Society at
www.vitiligosociety.org.uk
This is stated at the Vitiligo Society web site:
"Some people prefer to use products which only need to be applied occasionally and do NOT RUB OFF on clothing. For them FAKE TANS (sometimes called self tanning lotions) can give a longer lasting but less perfect colour.
Unlike skin camouflage, fake tans are not usually able to provide a perfect match with your own skin colour, but they do usually LAST for about FOUR to SIX days before they have to be reapplied.
They are very useful for large areas of vitiligo."

 

In addition, Michael is NOT the only person who suffers from Vitiligo. There are other cases. The Vitiligo Society states the following:
"It affects at least ONE in every HUNDRED people in countries throughout the world. It affects people of both sexes equally, and it affects all races. It can begin at any age, though about fifty percent of people with vitiligo develop it before the age of twenty five."

Let's see together the famous cases:

Black and White

"My skin got changed, but I still remain the same. The slavery of the beauty and the welfare make us inhuman. Now I'm more free"


 

Jeffrey Stanton Bell, black or white? He was born black, but vitiligo is winning the game and now, almost all his body is now white. Jeffrey, 43 years old, was a top model in New York but this illness took him away of his work, leaving him almost without friends and plunged him in a depression and anguish. "I had only an obsession: to give some sense to my existence" he said. He leaves the treatment with ultraviolet rays and he has decided to assume his change of identity. "The day that I understood the nature had done its way and that its steps were irreversible, it was when I left myself to be carried for the river of life". Now he owns a restaurant in Manhattan and reads classics books.

Vitiligo has changed black skin of Jeffrey in a big white spot.

The color disappears first in the small folds that skin forms and in the articulations. Then, the clear spots go extending all over the body. In only six months, Jeffrey Stanton Bell, black American, turned white from head to feet. Even his hair lost some color. They detected the illness back in 1993. He was 33 years old and the diagnosis hit him like a hammer: vitiligo (that derives from the latin word to appoint the white spots), caused by a dysfunction of the cells of the pigmentation. It affects to 2% of the world population.

Vitíligo appears for chance, without any known cause, and its origins are lost in history of the world. From the pharaohs to the Greeks and the old Hebrews, despigmentation has been perceived historically as “a punishment of God”. Jeffrey, the black white one, has seen how his life changed, how wrecked its identity in the middle of oversight and fear, before re-borning as “a new man".

His family is native of Barbados, in the West Indie. The sister of his grandmother also lost her ebony color and she went condemned to isolation. “The time of the superstition has not gone”, says Jeffrey. “Those ancient fears are still here for illnesses like leprosy, and also for vitíligo, for some inoffensive spots”.

Not so inoffensive, to be honest. “The pain is not physicist, is morale and affects the integrity of the human being”. He speaks now in third person, because now himself has become another one. “I am dramatically different”. He has been submitted to sessions of phototeraphy during a year. With ultraviolet rays and pills of melanina, trying to revive the color that has dull. The black returns to the surface, but only in form of spots. “Spots of color”, says. “It couldn't go back. My White body was full of large black spots. It was worse remedy that illness. All my hopes went broken in pieces”.

Metamorphosis was more difficult to accept because Jeffrey belonged to the exclusive world of the fashion and beauty. “I was model of Giorgio Armani in New York. At the begining, maked up the spots, but I couldn't continue hiding the
illness that advanced so fast. I saw myself forced to renounce my career”. Yesterday he was a quoted object of the worship to the appearance, and today counts himself among its victims. “Is certain that the people continues looking at me. Perhaps more still than before. But no longer is a matter of the same type of looks. No longer there is desire in them, but nausea and an insane curiosity”.

Their anonymous eyes are fixed to his body. “In the street, in the subway, looks of wondering, looks of fear that return against me. I have become an exception. It seems that people fears to be contaminated. I note an aggressive fear. They perceive me like a provocation and, at times, they adopt a defensive attitude. Some friends, with the ones that worked as model, now ignored me. As much as I told them that it was me, Jeffrey, the same one, they were set apart of me. ‘¿How are you able to look at in a mirror?', they told me. During those years I lived in the middle of a nightmare”.

“The most painful is to be felt marginalized. Not to have sense of belonging. I could not identify myself with no known group of individuals. It made me feel like a remote block, alone”. Those sensations took him to his childhood. Like in a countdown.

His father is American and Jeffrey grew, with his two sisters, in the white community of Boston, in Connecticut. “I was not white, but neither black. At 13, I stayed a long season in Sweden. And there I felt the same looks of fear, inquired. I felt then the same feeling of difference that I'm feeling today. I already exercised the same fascination”.

As the original color of his skin goes disappearing, he keeps enclosing in himself the same. Withdrawn, he hides his injury. During months he has lived “a time without end”, he says. He was not able to leave that situation. His father was the one that took the initiative.

“You don't have election. You have to accept yourself”, he said. “If this it is the worse thing than could happen to you in your life, you are a lucky person”.

And Jeffrey, little by little, went exploring himself deep inside. “I only had an obsession: to return to give sense to my existence”. This way, he learned to accept to that another one to be. As if the second one guided to the first. He's now ready able to explain this strange freedom in his jail. "My skin got changed, but I still remain the same. I am fully the same one. I had to die in some way, to lose me in the white of my body to be back in myself, to know at last who I was, to experience the simple fact to be. I renounced to the processing with ultraviolet rays and to any introspection and obliging. I refused to be the victim of myself and to contemplate my own disaster”.

Andrea shares Jeffrey's life 16 years ago. She's the one that encourages him to choose life. “He had to be happy to be able to do happy to the others”. Andrea endured the descent to the hell, the depressions and the renunciations. “In spite of my rage, of my bad humor, she was stood by my side. I do not know if I would be able to surpass this test without her help. But I will not consecrate our love with a son. We are not going to have children. I have too much fear for the possibility that the same thing happens to them. I am 43 years old and I can't be sure that my children could be as strong as I had to be”.

“During the first 30 years of my life I was surrounded by a material welfare that keep myself sleeping. Many times I was egotist and was in love with myself. I was floating in something like a galaxy, seduced by illusions. Suddenly, I woke up of my dream. The drama I had to live contributed the sense of the tragic thing and, therefore, of the happiness also. Today I know that to be well does not means not to be ill. I know, for my own, that the beauty is not what is not ugly. No longer I confuse happiness with satisfaction. I have returned stronger and more sensitive before the others and before its defects. We are slaves of the modern divinities: the beauty and the welfare. This slavery makes the people get inhuman. Today, I am more free”.

In spite of all, he carries his anguish on. “I have suffered so much time… The day that I understood the nature had done its way and that its steps were irreversible, it was when I left myself to be carried for the river of life. And no longer I have time for the people's murderous looks”. Although he keeps the consequences of that suffering in his eyes, which are always wide open.

Jeffrey has recovered his passion for theater and literature, that he studied for more than 20 years at the University of Yale. And he reads as fast as he is able the large works of the classics, above all, the writers of the XIX century. His idol is the poetess Emily Dickinson. “Sometimes I go through an ecstasy state, and experiment an immense appetite of knowledge”. Since four years ago earns the life with a restaurant, Bongo, that opened with his friend Cyntia in the heart of Manhattan. The place is like a bond with the black and mysterious Africa.

 

Loretta's story
I have been asked by the American Vitiligo Research Foundation, Inc. to share how having Vitiligo has impacted my life. It is not often that a person has the chance to experience society's reaction to two different and very extreme personal circumstances. I am an African-American woman who has experienced the negative effects of Vitiligo for the past thirty-five years. I have experienced racism as a "Black" woman and as a "White" woman. I live in a predominantly Black Community and attend a predominantly Black Church and live and work in a society that still, unfortunately, perceives white skin and any other skin as a vice. Before the complete change in my skin, I was victimized by certain members of society, because of my brown skin. Now I experience victimization, because of my white skin. With the almost complete change in my skin color, people do not perceive me to be who I truly am.

The face that society sees is not the one I was born with. My heritage and ancestry is not so easily identifiable by those with whom I interact. This is a painful experience particularly, because I was raised with a love and appreciation for my cultural and ethnic ancestry. This has had an impact on my family as well. My having Vitiligo has had a negative effect on my husband and our children. Some people mistakenly think my husband married a "White" woman and my children have been asked by their peers, if there mother is "White."
Beyond the physical challenges of this condition, there are the emotional and mental aspects as well, including a sense of isolation from others in your ethnic group. When the condition was in its most active stage, my face, arms and legs, were brown sprinkled with white spotty coloration's. Some people have refused to shake my hand or take money directly from me, and for the most part have treated me like I have a contagious disease. However, there is a positive side to the experiences I have had. It has made me more sensitive to the pain of others and caused me to be advocate for ending the ignorance, fear, and hatred associated with being or looking different from others.

It is through organizations such as the American Vitiligo Research Foundation, (AVRF) that these issues can be addressed and overcome. Spreading knowledge in a sensitive and caring way, and finding a cure is the focus of the AVRF, and I support their efforts.

 

FOX TV reporter refuses to give in to skin disorder turning him white

His once brown, even complexion is now mottled with pale patches around his eyes and mouth, along his nose and on his ears; his arms, shoulders and chest are speckled and blotched. "I'm a black man turning white on television and people can see it," says Thomas, an anchor and entertainment reporter for the local Fox Broadcasting Company affiliate. "If you've watched me over the years, you've seen my hands completely change from brown to white." Thomas has vitiligo, a disorder in which pigment-making cells are destroyed. White patches appear on different parts of the body, tissues in the mouth and nose, and the retina. "There is no cause. There is no cure, and it's very random," Thomas says. "I could turn all the way white or mostly white."

As many as 65 million people worldwide have the disorder, including up to 2 million in the United States. Few people, outside medical professionals and those with the disease, had heard the term "vitiligo" until Michael Jackson revealed in the early 1990s that the disorder was behind his skin turning brown to white. It's not fatal, but experts say vitiligo robs people of self-confidence, evokes ridicule and unpleasant stares, and pushes some into unforced seclusion. The 40-year-old Thomas says that's not where the disorder needs to be. He openly talks about vitiligo and how it has affected his life and career, and has written a book about his journey titled "Turning White: A Memoir of Change." Along the way, Thomas says he's met others with the disorder and has become a celebrity spokesman for the Columbus, Ohio-based National Vitiligo Foundation.

Vitiligo attacks the soul and psyche, foundation executive director Robert Haas says. He uses a combination of creams and makeup to cover the growing patches of skin — which he calls devoid of color — on his face, hands and arms. Viewers, co-workers and, for years, his basketball buddies, were none the wiser. Only family members and those closest to him knew the secret he had kept since age 25. Thomas first noticed a change after getting a haircut while working in Louisville He looked in a mirror and thought the barber had nicked him. A closer look revealed a pale spot, about the size of a quarter.

Even though Thomas uses makeup to conceal his skin discoloration, he realized the vitiligo was becoming more obvious when he couldn't hide it from a preschooler during a story about a playground. His two-toned hands frightened the girl, who began to cry. Thomas finally agreed to tell his story on television in November 2005.

 

 

And how Michael himself feels about that?
(below is a part of interview Michael did in 1993)

Michael & Oprah Neverland 1993

Oprah: Okay, then let's go to the thing that is most discussed about you, that the color of your skin is obviously different than it was, when you were younger, and so I think it has caused a great deal of speculation and controversary as to what you have done or are doing, are you bleaching your skin and is your skin lighter because you don't like being black?

Michael: Number one, as I know of, there is no such a thing as skin bleaching, I have never seen it, I don't know what it it.

Oprah: Well they used to have those products, I remember growing up always hearing use bleach and glow, but you have to have about 300, 000 gallons.

Michael: Okay, but number one, this is the situation. I have a skin disorder that destroys the pigmentation of the skin, it's something that I cannot help. Okay. But when people make up stories that I don't want to be who I am it hurts me. (tears in eyes)

Oprah: So it is...

Michael: It's a problem for me that I can't control...

Oprah: So whed did this start, when did your...when did the colour of your skin start to change?

Michael: Oh boy, I don't...sometime after Thriller (1982), around Off the Wall, Thriller, around sometime then.

Oprah: But what did you think?

Michael: It's in my family, my father said it's on his side. I can't control it, I don't understand, I mean, it makes me very sad. I don't want to go into my medical history because that's private, but that's the situation here.

Oprah: So okay, I just want to get this straigt, you are not taking anything to change the color of your skin...

Michael: Oh God, no, we tried to control it and using make-up evens it out because it makes blotches on my skin, I have to even out my skin.