Vitiligo |
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By Valentina P. (DangerousBadGirl) - www.mjloveland.altervista.org |
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The color of his skin used to be black, why is it white now? There's been so many rumours, speculations among the people, that I've decided to make a brief explanation here. Michael Jackson suffers from an disease called Vitiligo ("leukoderma"). Vitiligo causes destruction of melanocytes in the skin. Melanocytes provide the pigment that gives skin its color. The loss of melanocytes alters both the structure and function of these organs and results in the absence of pigment (irregular white spots or patches appears on the skin). It may turn up at any age. The cause of vitiligo is not greatly understood, and there may be many causes that result in the condition. This disease affects an estimated 2% of the world's population. It affects individuals of all ethnic origins and both sexes. Loss of pigment most commonly is noted first on the hands, feet, arms, face or lips. Frequently this disease is progressive.
Vitiligo patients use make-up, tanning lotions and various other products to camouflage the discoloration or blotches. |
In addition, Michael is NOT the only person who suffers from Vitiligo. There are other cases. The Vitiligo Society states the following: |
Black and White
Jeffrey Stanton Bell, black or white? He was born black, but vitiligo is winning the game and now, almost all his body is now white. Jeffrey, 43 years old, was a top model in New York but this illness took him away of his work, leaving him almost without friends and plunged him in a depression and anguish. "I had only an obsession: to give some sense to my existence" he said. He leaves the treatment with ultraviolet rays and he has decided to assume his change of identity. "The day that I understood the nature had done its way and that its steps were irreversible, it was when I left myself to be carried for the river of life". Now he owns a restaurant in Manhattan and reads classics books. |
Vitiligo has changed black skin of Jeffrey in a big white spot. Not so inoffensive, to be honest. “The pain is not physicist, is morale and affects the integrity of the human being”. He speaks now in third person, because now himself has become another one. “I am dramatically different”. He has been submitted to sessions of phototeraphy during a year. With ultraviolet rays and pills of melanina, trying to revive the color that has dull. The black returns to the surface, but only in form of spots. “Spots of color”, says. “It couldn't go back. My White body was full of large black spots. It was worse remedy that illness. All my hopes went broken in pieces”. Metamorphosis was more difficult to accept because Jeffrey belonged to the exclusive world of the fashion and beauty. “I was model of Giorgio Armani in New York. At the begining, maked up the spots, but I couldn't continue hiding the
“The most painful is to be felt marginalized. Not to have sense of belonging. I could not identify myself with no known group of individuals. It made me feel like a remote block, alone”. Those sensations took him to his childhood. Like in a countdown. As the original color of his skin goes disappearing, he keeps enclosing in himself the same. Withdrawn, he hides his injury. During months he has lived “a time without end”, he says. He was not able to leave that situation. His father was the one that took the initiative. And Jeffrey, little by little, went exploring himself deep inside. “I only had an obsession: to return to give sense to my existence”. This way, he learned to accept to that another one to be. As if the second one guided to the first. He's now ready able to explain this strange freedom in his jail. "My skin got changed, but I still remain the same. I am fully the same one. I had to die in some way, to lose me in the white of my body to be back in myself, to know at last who I was, to experience the simple fact to be. I renounced to the processing with ultraviolet rays and to any introspection and obliging. I refused to be the victim of myself and to contemplate my own disaster”. |
| Loretta's story |
I have been asked by the American Vitiligo Research Foundation, Inc. to share how having Vitiligo has impacted my life. It is not often that a person has the chance to experience society's reaction to two different and very extreme personal circumstances. I am an African-American woman who has experienced the negative effects of Vitiligo for the past thirty-five years. I have experienced racism as a "Black" woman and as a "White" woman. I live in a predominantly Black Community and attend a predominantly Black Church and live and work in a society that still, unfortunately, perceives white skin and any other skin as a vice. Before the complete change in my skin, I was victimized by certain members of society, because of my brown skin. Now I experience victimization, because of my white skin. With the almost complete change in my skin color, people do not perceive me to be who I truly am. The face that society sees is not the one I was born with. My heritage and ancestry is not so easily identifiable by those with whom I interact. This is a painful experience particularly, because I was raised with a love and appreciation for my cultural and ethnic ancestry. This has had an impact on my family as well. My having Vitiligo has had a negative effect on my husband and our children. Some people mistakenly think my husband married a "White" woman and my children have been asked by their peers, if there mother is "White." Beyond the physical challenges of this condition, there are the emotional and mental aspects as well, including a sense of isolation from others in your ethnic group. When the condition was in its most active stage, my face, arms and legs, were brown sprinkled with white spotty coloration's. Some people have refused to shake my hand or take money directly from me, and for the most part have treated me like I have a contagious disease. However, there is a positive side to the experiences I have had. It has made me more sensitive to the pain of others and caused me to be advocate for ending the ignorance, fear, and hatred associated with being or looking different from others. It is through organizations such as the American Vitiligo Research Foundation, (AVRF) that these issues can be addressed and overcome. Spreading knowledge in a sensitive and caring way, and finding a cure is the focus of the AVRF, and I support their efforts. |
FOX TV reporter refuses to give in to skin disorder turning him white |
As many as 65 million people worldwide have the disorder, including up to 2 million in the United States. Few people, outside medical professionals and those with the disease, had heard the term "vitiligo" until Michael Jackson revealed in the early 1990s that the disorder was behind his skin turning brown to white. It's not fatal, but experts say vitiligo robs people of self-confidence, evokes ridicule and unpleasant stares, and pushes some into unforced seclusion. The 40-year-old Thomas says that's not where the disorder needs to be. He openly talks about vitiligo and how it has affected his life and career, and has written a book about his journey titled "Turning White: A Memoir of Change." Along the way, Thomas says he's met others with the disorder and has become a celebrity spokesman for the Columbus, Ohio-based National Vitiligo Foundation.
Even though Thomas uses makeup to conceal his skin discoloration, he realized the vitiligo was becoming more obvious when he couldn't hide it from a preschooler during a story about a playground. His two-toned hands frightened the girl, who began to cry. Thomas finally agreed to tell his story on television in November 2005. |
| And how Michael himself feels about that? (below is a part of interview Michael did in 1993) |
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Oprah: Okay, then let's go to the thing that is most discussed about you, that the color of your skin is obviously different than it was, when you were younger, and so I think it has caused a great deal of speculation and controversary as to what you have done or are doing, are you bleaching your skin and is your skin lighter because you don't like being black? Michael: Number one, as I know of, there is no such a thing as skin bleaching, I have never seen it, I don't know what it it. Oprah: Well they used to have those products, I remember growing up always hearing use bleach and glow, but you have to have about 300, 000 gallons. Michael: Okay, but number one, this is the situation. I have a skin disorder that destroys the pigmentation of the skin, it's something that I cannot help. Okay. But when people make up stories that I don't want to be who I am it hurts me. (tears in eyes) Oprah: So it is... Michael: It's a problem for me that I can't control... Oprah: So whed did this start, when did your...when did the colour of your skin start to change? Michael: Oh boy, I don't...sometime after Thriller (1982), around Off the Wall, Thriller, around sometime then. Oprah: But what did you think? Michael: It's in my family, my father said it's on his side. I can't control it, I don't understand, I mean, it makes me very sad. I don't want to go into my medical history because that's private, but that's the situation here. Oprah: So okay, I just want to get this straigt, you are not taking anything to change the color of your skin... Michael: Oh God, no, we tried to control it and using make-up evens it out because it makes blotches on my skin, I have to even out my skin. |